Tillsammans är vi Krama Era Barn

Se videon (3.21 min).
Vi gör skillnad, och vi blir fler och fler som stöttar och sprider medvetenhet om Sanfilippos sjukdom. Tack!

Sanfilippo Soldiers Never Fight Alone!

#CureSanfilippo #StopSanfilippo #FindaCure #SanfilipposSjukdom #MPSIII #Forskning #Välgörenhet #Fundraising #SanfilippoTypC #KramaEraBarn

Övrigt

Inbjudan årsmöte

Härmed välkomnas alla medlemmar att närvara vid föreningens årsmöte. Datum: 29 maj 2023, Kl.16.30Plats: Drottninggatan

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Information

Världsdagen för Sanfilippos sjukdom 16 november

Världsdagen handlar om att sprida medvetenhet och starta konversationer runt om i världen om

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Information

Sanfilippo Community Conference

Kostnadsfri Virtuell konferens 7-8 Juli som samlar familjer, vårdgivare, forskare, läkare, terapeuter, förespråkare, biotekniker

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