Tack – Krama Era Barn

Olika initiativ

Här presenterar vi några av de många fina initiativ som har tagits för att bidra till ökad medvetenhet och samla in pengar till stöd för forskningen om Sanfilippos sjukdom genom Krama Era Barn. Vill du också hitta på någonting? Kontakta oss gärna om du vill bolla idéer.

Summering Klarälvsloppet

Eventet Krama era barn – Klarälvsloppet kan nu summeras.

Armband omgång #1 avslutad

Nu har det gått nästan tre månader sedan Selma & Leyah började att göra de första Krama era barn-armbanden vilket vi nu kan konstatera blev en succé!

Tack Ellie och alla andra

Idag blev sammanställningen klar för Ellies underbara initiativ med dansföreställningen Ta mig tillbaka – Ellies berättelse som var HELT MAGISK!

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